LIVE the life you have!

Living with a rare, life-shortening degernative disease is hard. And whether you are on this rare disease journey yourself, supporting a loved one, or dealing with life's many other challenges, perspective matters.

So lean into life by celebrating each and every RazzberryDay™. A RazzberryDay™ is any day, any moment, any act where you bring your determination and grit to push back, to laugh and find joy ~ a razzberry to the hard stuff, because you know what?

We got this

Thank you for your time to learn more about rare diseases, because awareness helps us all. And we'd love it if you'd check out our RazzberryDay™ merchandise via Bonfire. Your purchase will help support rare disease research through our business giving program.

RazzberryDay | Official Merchandise | Bonfire

1 in 10 are affected by a rare disease

From the National Organization for Rare Disorders

7,000 diseases

The National Institute of Health estimates that there are approximately 7,000 rare diseases

Affects 25 - 30 million in US

Rare diseases are a public health issue, with chronic and devastating impacts

95% have no treatment

Many are not being studied by medical researchers and off label treatments may not be covered by insurers

2/3 are children

Many, but not all, rare diseases are genetic and obtaining an accurate diagnosis can take years

From NORD Rare Disease Day Frequently Asked Questions

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